Friday, April 17, 2009

Looking for Someone to Blame

I blame myself a lot for having breast cancer. I blame myself beause I had a cyst years ago in my right breast that was aspirated. And though I asked what caused cysts and my doctor didn't have a real answer for me, I let it go. I blame myself for when the mamograms were not clear and I had ultrasounds to determine that they were "ok"; I didn't pursue it further. I blame myself feeling something and trusting medical technology and not insisting that the doctor's keep looking forward. I blame the OB/GYN for checking my breast and saying everything was ok. I blame the surgeon for checking my breast and saying everything is okay. I blame myself for waiting til my forties to eat healthy. I could go on and on. However, last week when I went for a second opinion about lymph node removal and tried to share with my family what the doctor said the blame game started again.

Specifically it started with my mother who got upset with me because she thought I said the doctor who gave the second opinion said I had chemo unnecessarily. When in fact that is not what I said nor what the doctor who gave the second opinion said. Later I found out that Mom called Ferlando and Katrina to verify that I did indeed tell them that What I did share with them all is that the doctor said that studies have found in the type of breast cancer that I have that chemo is not always effective and in the future may only be treated with surgery, radiation and hormone thearpy. Then it dawn on me, that Mom is looking for someone to blame. Ferlando and Katrina shared with me today that they were sure what the second opionion really meant.

It's a daunting task for me to understand everything. So, I stay on the internet, always researching, picking up books at the doctor's office, asking questions of medical professionals and most of all talking to others who have experienced breast cancer and other types of cancers.

The support group at the American Cancer Society also helps. I really wish that Mom would consider attending the support group or calling the thearpist there. I think it would really help her as it has helped me and she could connect with others willing to share those deep inner feelings that others go through when watching a loved one go through cancer treatment. They could help her understand and know that there really is no one to blame. I know that but I still struggle with it. I know Mom is struggling watching me go through and I know she still carries the others as well...there is no blame it just as the book saids "Bad things happen to good people all the time". It is what it is!

Thursday, April 16, 2009

Lymph Nodes

Well relunctantly I decided to have additional lymph nodes removed. I made the decision based upon medical advice given to me by several physicians. It's disappointing to me because I want all of this to be over with. However, after visiting the plastic surgeon today I realize that this will go on for some time to go. Because I have to have radiation, he can't complete the breast restruction at the same time that the lymph nodes are removed. The order of things will go something like this:

1) lymph node removal - level one and level two (possibley of to 20 lymph nodes)
2) Radiation - Four weeks of radiation after 4 weeks of healing from the lymph nodes surgery
3) Completion of breast reconstruction six weeks after completion of radiation.\

Total time approximaley four more months


Well I am getting some hair. I have hair growing under my arms and the peach fuzz on my head is starting to lay down. I look like a little old man with thinning hair.

I'm working on getting my weight down. I lost 2 pounds this week but learning to eat healthy again is hard. I cheated today, I had a slice of cheese cake from the chees cake factory. But I've worked out every day this week.

My energy level is slowing returning and I'm feeling better so I'm feeling more encouraged. I just hate to give it up to go back to surgery and healing all over again.

Well that's it for now.

Holla

Thursday, April 9, 2009

All Clear

Thank you Jesus!

Yip Yip Yippy Yea! I got the results from the PET Scan today. It was all clear, no more cancer!!!I'm so glad.


Now I need to make the dicision take more nodes or not. The doctor said to me today that the things they do to cure us are horrible but cancer is worst. So that's in the forerfront of my mine as I go into this weekend thinking and praying about what to do. Anyway, just celebrating this moment for now.

Holla!

Wednesday, April 8, 2009

Second Opinion

Today I went to see a doctor at the University of Chicago for a second opinion in regard to removing additional lymph nodes. My prayer has been that I could forego going back to surgery for lymp node removal and subjecting myself to higher risks of lymphdema. My thinking was that usually lymph nodes are removed prior to chemo and since I had chemo is it really necessary to remove them now. My surgeon told me that there is no real data about this situation because most people have the nodes removed before chemo. He indicated that is it reasonable not to remove them but could not say it would reduce or increase the risk of recurrence. The surgeon indicated that his best personal advice to me would be to remove the nodes. My oncologist gently suggests that they should be removed as well. Today's second opinion came from a female who also recommends that the nodes be removed. However, she gave me more detailed information that clarified some things for me. I have to tell you that I was/am leaning toward not having the nodes removed. However, tonight I will give it all to
God and see what tomorrow brings. I got back to the oncologist tomorrow he is expecting a decision. I will also get the results of the PET Scan I took last week.

On another note, Mom called today to take me to Macy's to buy me a Easter outfit. It was so cute, it made me think of the days when I took the girls Easter shopping. I know that she wanted to do it to encourage me to go to church. I told her I was not ready nor do I want the bigger clothes; not just yet anyway.

The rescue cavalier sent a women to my home today. Remember I said I wanted a dog when this is all said and done and Tyler is away at school....well we will see.

It's happening, in a weird way but it's happening. I continue to loose hair. My eyebrows are now almost all gone, the hair on my leggs is disappearing now too. It's the last of hair I had, but guess what I have hair growing in my armpits, real hair not just peach fuzz. I have peach fuzz on my head now, it's not real hair yet, you have to get real close to me to see it. In a way it looks like an old man who has lost his hair and only has that soft baby hair close to his scalp. At this point it looks white. I was told that it may all grow back white. Well only time will tell. Hopefully I will have enough hair by Tyler's graduation to toss the wig!

Wednesday, April 1, 2009

The Wounded

Tonight I attended my cancer support group. The group has grown since I joined, which really bothers me. Breast Cancer seems to be running rampant. After tonight's meeting I came away with the title of today's entry into the blog. There are about 15 women in the group and each and every one of them has been wounded by the breast cancer treatment and healing. The treatment has left wounds like mine; neuropathy, weight gain, heart problems, bone pain, bone loss, other cancers, burning, loss of breast, altered breast, pain, arm pain, lypmphdema, fatigue, mental angish, depression, loneliness, abandonment, lost of faith, fear, and the list goes on. We are in the group to support each other through the journey, we live, we learn to laugh, we focus on "me", we trust our doctors, we challenge them and most of all we wonder "why". However, there are women in the group who are suvivors, two time survivors, and carry the wounds from the first treatment and the wounds from treatment of the recurrence......Just wounded. How do you heal the wounds...with Life, with faith, with prayer.

Pray for the wounded!

Sunday, March 29, 2009

Lots of stuff

Well it's been a while since I've sat down to write in the blog. It's is not because I haven't thought about it but rather because my thoughts are everywhere and I didn't think I could make since of them on paper. However, I have decided to attempt to put my thoughts on paper or in the blog I guess I should say.

My last chemo treatment was March 2, 2009. Since that time I have been getting stronger and stronger and yet my energy level still is not where it was before chemo started. I go out and I can pretty much geth through whatever I am doing but when I come in I am either knocked out (asleep) or I just sit and don't move around much. Part of not moving also has to do with motivation. The house has become a different place for me. It's place where you're suppose to rest but then I can't get up and the walls tend to close in on me.

The House
The house is generally a mess. I've been trying to get movtivated to clean it up because even when the girls clean it, it just doesn't seem clean. So each day I try to do a little. Today for example I am washing and folding clothes that have been left on the utility room floor for over a month. Today I will finish that up. Tyler has been washing clothes but stuff remains in the floor and the utility room and getting her to put stuff way is a chore unless she wants to go somewhere or do something.

The power on the lower level of the house was out for about two weeks. I didn't know what I was going to do about that because my finances allow me to pay mortgage. cobra and car note. There's no room for repairs and other stuff not going well in the house. So I pray constantly that the the house will run well and that nothing will go wrong. However, when the power went out I decided not to worry and was starting to make the adjustment to not being able to use the lower level of the house at night. The garage door also was not working but thank goodness the car was not in the gargage when the power was lost. I called Darlene's cousin Butch who did some electrical work for me last year. He called his friend Lyndon and they came out a couple of times and got everything working. I didn't know how I was going to pay them and when I asked them how much I owed them, they told me the work was from their heart and that I didn't owe them a thing. Amazing, God is good and the two of them can never know just how grateful I am.

I often wonder how I can say "Thank You" beyond the words so that instensity of the heart felt gifts I have received are appreciated.

The Girls
The girls are doing well. Tyler is running better. It seems that a weight has been lifted from her sholders since chemo ended. I have been able to get out to her track mets. The one I didn't feel so well but I was determined to go and I'm glad I did. Since that time I've managed to get to evey meet. A couple of time my feet have been bothering me (the neropathy causes so much pain, I can barely walk). However, Darlene, Breyen and others have made sure that I've made the games.

We also got good news. The coach from U of I called to say they are offering Tyler a full ride. "Thank You Jesus". We're just waiting for the paper work so we can get it signed. In the mean time as most of you know; Tyler had her heart sat on going to Hampton. I had promised her that we could go see Hampton so that she would know if she would feel as if she missed out on somthing or not and if she still wanted to go after our visit, she would understand that she would have to work toward getting the the financial to make her attendance possible. I pray that God will show her the clear path and what works best for her. I had been looking at fare to get to Virginia and waited too late to get good pricing. I had asked Mom to use her credit card and then I thought just let me take a look at my United mileage. I knew I had no points but I also know that I accoumulate points with my debit card but I didn't thng I had many points and I didn't. I had 67 points and guess what it was enough to get us both there. God is good.

This weekend Tyler participated in the Indoor Track and Field Prep Top Times Championship. She came in 8th in the 55 witha a time of 7:29 and her 4 X 2 team came in 2nd. It does my heart good to see her compete and do well. I pray she will do even better in college and possibly the olympics one day but even without the olympics, it just a joy to see her compete. The only sad part is that her family does not take the time to come out to see her compete. Oh well, it doesn't bother her so I won't let it bother me.

We got Tyler's prom dress and now need to get it altered. Louis told me to get the dress and he would pay for atleast half. However, after I used bill money to get it, he decided that he could only spare $100. That man will never change. It took a lot to keep my stress level down. I refuse to allow him to adverses affect my health via stress. He's thinking about getting remarried and told me that his fiance cares about him and his children. He comes out to all of Tyler's track meets, gives her $20 here and there and helps Breyen here and there, yet he never comes through where it really counts. I reminded him that he saw his own mother go through breast cancer and heart disease and what it did to her financially. I should have known, he only offered his daughter $100 in spending money to half way around the world to Australia. Knock me up side the head she told me he didn't help her either, shortly thereafter she died. It's hard for me to keep going to court to force him to meet his financial obligations because I don't have the money for a lawyer. I trid doing it on my own (per se) but my health doesn't allow me to keep up the numerous court dates before a judge will make a decision and without a lawyer the dheecision is usually in his favor. I've not had good success in the legal arena but I will keep trying to find someone to help. Maybe one day he will just do the right thing. Funny in our recent conversation he pointed the finger at me for the divorce (he still can't figure out why that happened) I didn't explain!

Breyen is doing her thing. She is having some ah ha moments and I'm getting some peace. She talks to me everyday and I often hear her repeat a lot of things I've been trying to teach her a long the way. I continue to pray for God's angel's to protect her until she finds her place and settle's down so that the beautiful young women that I know and raised can shine through.

Mom
Mom and I had lunch last week. It was a quiet lunch. I think we are both finding a new place with our relationship. I know she worries about me and as I get better I pray that some of the worry will cease. Better yet I pray that the stress that she has in her life as a result of worrying about me will go away. We haven't been spending a lot of time together, as it seems since before my birthday weekend our time together was stressful and full of drama. The drama is too hard for me. It takes it toll along with everything else that I'm going through, so for me I've had a little peace.

My Health

Well the chemo left me with neurothpathy (nerve pain) which often prevents me from walking. It also causes a lot of pain when I shower ( I hate to be dirty and stinky; I hate to take a shower). I take showers as quickly as possible. Last weekend I managed to get to a track meet and to Nona's baby shower but I was in a lot of pain. I take medication for the pain three times a day. In addition I have done some research and found some natural herbs that are suppose to help. According to the doctor, the neuropathy should ease up over time; eveyone is different so it may take weeks, months, years or never go away. I have been praying that it will indeed go away. I tried last week to put on a pair of low heel boots, no go. My feet didn't like that at all.

I want to go to church, but the chemo and the steroid have put 20 pounds on me. I can't wear my clothes. I stay in sweats and gym shoes and even my sweats are getting tight. I need to diet, but it's hard. I tell myself, I've gotten this weight off before, I can do it again. However, before I was able to run and workout hard, now my feet won't even allow me to walk much let alone attempt to walk on a treadmill or run. And wearing hard shoes is a no go for now. However, I am encouraged. I have not had as much pain in my feet as I did last week.

I know I gained weight because of the steroid but I can't stand me. I can't stand to look at me and I feel very uncomfortable. I know I know many say I'm still not that big but for me it's a set back mentally and physically. It's a big deal for me and yet it's very small in the scheme of things.

Next Steps
I have to decide rather or not to have lympn nodes removed. It means more surgery, and a higher increase of lymphdema. My oncologist thinks I should have them removed, my surgeon thinks I should have them removed, my OB Gyn thinks I should have the removed. But not can really tell me why. Typically lymph nodes are removed before chemo. Since mine were not, my question is: "did the chemo kill the cancer in the nodes? Either way if some nodes are positive and some negative they don't usally change your prognosis or change treatment. Statically I have not done well with the odds on the positive side of things during all of my treatment so I'm weary of having the nodes out, a little distrustful and questioning myself about being vane in my decision because I don't want to walk around with a big arm and not able to do the things I do today in regard to exercise. My children think I should have the nodes reomoved and one of Tyler's friends's Mom let me know she had hers nodes removed, they were all negative and she did get lymphdema. My friend Darlene suggested that I fast and pray and let the God lead me. The best plan yet!

Hair
It's been almost a month and I still have no hair. In fact my eye brows are still thinning. As Breyen pointed out, I have peach fuzz. It's mostly gray though. I figure by June I might have a little hair. I'm tired of wigs so as it gets warmer I may sport my bald head.

Well yall there's a lot more, but I think this is enough for now.

Holla Back!

Monday, March 16, 2009

What a Day

This morning I started my day preparing for Chemo. Breyen was supposed to take me to chemo but since she was up late helping Rachel and Robin get settled in their new place, I took Chris up on her offer to take me to chemo. Chris picked me up at 7:45. She took me to physical thearpy so we could try a thearpy that will hopefully give me some relief from the neuropathy in my hands and feet. From there we went on to the Doctor's office for chemo. Things were moving really slow so Chris and I just sat and laughed and talked. I was call in to have my blood draw; it turned out that my white blood cell count was really low. As a result, I was concerned that I would not be able to get chemo today. I have been on schedule (every two weeks) with my chemo treatments from the beginning and I did not want to put it off. I especially didn't want it put off today because today's chemo treatment was scheduled to be the last. The toughest part today was that the neupathy was really bad in my feet. When I was called in to see the doctor they took my weight and I won't turn you what my weight is, just know I'm a big girl! Anyway when the doctor came in and I shared with him how severe the neuropathy has been, he said you are done, no chemo today. I said to him explain "done" he said you have 98 percent of the chemo in your system and if we give you chemo today with neuropathy as bad as it is it would weaken you and you would not be able to walk. I didn't know rather to laugh or cry, scream for joy or what so I just simply thanked God that I am done with this poison. I hugged chris and the Dr. Here I was concerned that I would not get the chemo and would be off schedule due the WBC and God just stepped in and gave me a special gift!!! What an awesome God he is. There is more I have yet to consider the removal of more lymp nodes and more good news, I will have to do 4 weeks of radiation instead of 6. I went back to say thank you the chemo nurses. I also went into the chemo room to say goodbye to the other patients that I sat next to every other week and shared prayers with and they had good news as well. A couple were in remission and another was receiving her last chemo.

Chris and I went to celebrate that means eating; something I will definitely have to stop. I'll worry about that when the neuropathy allows me to be on my feet more often. It may take awhile but that's okay. I just look forward to it going away. And, I may have a little hair by this time next month. I call Mom and all my other family members and friends to share the good news..."it was good"

What a Day... A Good Day, A Blessed Day.

Praying for complete healing.

Holla